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Grants for children and young adults with a rare disease - March Round

Funding Providers

Steve Waugh Foundation

Location

Australia Wide

Funding Type

Cash grant G14996

Primary Category

Health

Eligible to

  • Individuals

Funding

Total pool: Undisclosed

Round(s)

Currently Closed

  • Opens 01-Jun-2025 Closes 30-Jun-2025
  • Opens 01-Sep-2025 Closes 30-Sep-2025

Last Round

  • Closed 31-Mar-2025
Please note: this grant program is currently not taking any applications.

Purpose

Individual Grants are for government approved medicine, specialised equipment and treatment therapies, for children and young adults (0-25yrs) with rare diseases.

Overview

The Steve Waugh Foundation aim to support children and young adults (0-25yrs) who have a rare disease with a prevalence of at least 2:100,000. The Foundation work to give these children and young adults a better quality of life, offering support and the opportunity to connect with others.

Example

The Foundation will consider funding:

  • Equipment
  • Mobility Aids 
  • Communication Devices
  • Therapy
  • Minor home modifications

Limitations

Criteria for funding:

  • The Steve Waugh Foundation (‘the Foundation’) will support children and young adults aged 0-25 years who have a rare disease with a prevalence of at least 2:100,000.
  • You must be an Australian Citizen or an Australian permanent resident of at least five years to gain assistance from the Foundation and;
    • Have a recognised rare disease as identified on ORPHANET: www.orpha.net, or if not recognised your medical specialist must confirm the disease is rare
    • Have an Australian Medicare card
    • Have already made an application for government funding assistance for the requested item, e.g. NDIS - with documented evidence or NDIS approval or decline
    • The rare disease has been formally and officially diagnosed by a Paediatrician or other Medical Specialist
    • You have and can provide evidence of the diagnosis of the rare disease signed off by a Paediatrician or other medical specialist
    • You have and can provide medical, health and other support documentation required as part of your application

Medical Specialists:

  • A Medical Specialist is any doctor (not a GP), who has qualified in a specialty e.g. MBBS. Allied health professionals
  • Social workers, Physiotherapists, Psychologists, Occupational Therapists, Speech Therapist etc are NOT classified as Medical Specialists

What the foundation does not fund:

The Foundation is not currently able to provide financial assistance for -

  • Purchase of new or used vehicles or their modification
  • Major home modifications/renovations e.g. swimming pools, spas
  • Rent, mortgage payments, household utilities, general living expenses 
  • Conferences, meetings, travel, accommodation - local and international
  • Costs associated with doctor and specialist appointments and surgeries  
  • Research and Clinical Trials
  • Assistance Dogs

Contact Details

We take pride in ensuring our data is up to date and accurate, but you should not rely on our data alone. Please double-check important information on the funder's website before applying.