Grants for children and young adults with a rare disease - March Round
Funding Providers
Steve Waugh Foundation
Location
Australia WideFunding Type
Cash grant G14996
Primary Category
HealthEligible to
- Individuals
Funding
Total pool: UndisclosedRound(s)
Currently Closed
- Opens 01-Jun-2025 Closes 30-Jun-2025
- Opens 01-Sep-2025 Closes 30-Sep-2025
Last Round
- Closed 31-Mar-2025
Purpose
Individual Grants are for government approved medicine, specialised equipment and treatment therapies, for children and young adults (0-25yrs) with rare diseases.
Overview
The Steve Waugh Foundation aim to support children and young adults (0-25yrs) who have a rare disease with a prevalence of at least 2:100,000. The Foundation work to give these children and young adults a better quality of life, offering support and the opportunity to connect with others.
Example
The Foundation will consider funding:
- Equipment
- Mobility Aids
- Communication Devices
- Therapy
- Minor home modifications
Limitations
Criteria for funding:
- The Steve Waugh Foundation (‘the Foundation’) will support children and young adults aged 0-25 years who have a rare disease with a prevalence of at least 2:100,000.
- You must be an Australian Citizen or an Australian permanent resident of at least five years to gain assistance from the Foundation and;
- Have a recognised rare disease as identified on ORPHANET: www.orpha.net, or if not recognised your medical specialist must confirm the disease is rare
- Have an Australian Medicare card
- Have already made an application for government funding assistance for the requested item, e.g. NDIS - with documented evidence or NDIS approval or decline
- The rare disease has been formally and officially diagnosed by a Paediatrician or other Medical Specialist
- You have and can provide evidence of the diagnosis of the rare disease signed off by a Paediatrician or other medical specialist
- You have and can provide medical, health and other support documentation required as part of your application
Medical Specialists:
- A Medical Specialist is any doctor (not a GP), who has qualified in a specialty e.g. MBBS. Allied health professionals
- Social workers, Physiotherapists, Psychologists, Occupational Therapists, Speech Therapist etc are NOT classified as Medical Specialists
What the foundation does not fund:
The Foundation is not currently able to provide financial assistance for -
- Purchase of new or used vehicles or their modification
- Major home modifications/renovations e.g. swimming pools, spas
- Rent, mortgage payments, household utilities, general living expenses
- Conferences, meetings, travel, accommodation - local and international
- Costs associated with doctor and specialist appointments and surgeries
- Research and Clinical Trials
- Assistance Dogs
Applications / Guidelines
Contact Details
- Phone: 1300 66 99 35
- Email: grants@stevewaughfoundation.com.au
We take pride in ensuring our data is up to date and accurate, but you should not rely on our data alone. Please double-check important information on the funder's website before applying.